|"Many Lyme patients remember the last day they felt well".
These may appear weeks, months, even years
after the bite:
The Links below will take you directly to sites
with excellent information and resources.
* Lyme Disease Association
Dedicated to educating about Lyme Disease, and supporting
research into treatment. Publications available at no or low
cost, online or by ordering. Provides a physician list for
patients seeking a lyme literate doctor.
* Lyme Disease Network
Includes best general online support and information
sharing message board, excellent set of links. Includes
section to help find Lyme literate physicians and file area.
Sponsored by Lyme Disease Association.
* Lyme Treatment Guidelines By Joseph J. Burrascano, M.D.
Print this out and provide a copy to your primary care
providers Dr. Burrascano is a prominant Lyme specialist on
the many factors involved in diagnosing and treating Chronic
Lyme Disease and other tick-borne diseases. This is not the
only approach, but gives an excellent systematic approach to
diagnosis and treatment options. Updated September 2005.
The paper is available in pdf format for offline reading and
* ILADS International Lyme and Associated Diseases
The leading international group for information on Lyme and
other tick related diseases
|Lyme disease is called the "Great Imitator". It's often misdiagnosed as M.S., Lou Gehrig's disease,
Fibromyalgia, Chronic Fatigue, Rheumatoid Arthritis, Depression, and many other diseases.
Since no currently available test is definitive in ruling in or ruling out Lyme disease, physicians must make a clinical diagnosis by reviewing patient
history and symptoms. However, having one or more of these symptoms does not ensure that you have Lyme disease!
A typical pattern of disease onset occurs several days, weeks, or month after an infected tick bite. A person usually experiences "flu like"
symptoms such as muscle and joint aches and pains, a low-grade fever, and/or fatigue. Many will notice a rash form around the location of the
bite, however Lyme may still be present even if no rash forms. If a rash does form, it will usually appear within the first week, but it can take up to a
month to appear. The rash may be circular in shape and will often continue to grow, taking on the appearance of a "bulls-eye". However, there may
be multiple rashes, or of different shapes. It is often diagnosed as spider bites, or poison ivy.
As Lyme Disease progresses, a person may experience unrelenting fatigue, fibromyalgia -like symptoms, facial paralysis (Bell's Palsy), liver
and/or spleen enlargement, severe headaches (migraines) and abnormalities in heart rate and rhythm. In the latest stages of Lyme Disease
severe cognitive impairment can occur with continued fatigue, joint pain or swelling, stabbing and/or burning sensations, Tourettes, seizures,
persistent backache, stiff neck, degenerative muscle and nerve disease as well as permanent disability. Lyme disease can be passed
congenitally from mother to child, causing miscarriages, stillbirths and birth defects. It can be fatal.
|Iowa Lyme Disease Association-Education
P.O. Box 221
Brighton, IA 52540